LIVING ROOMS OF RARE

Hear the stories of artists, writers and performers whose firsthand experiences can help us view rare diseases through a variety of lenses and mediums. Through their advocacy and accomplishments, they have all made significant strides in reshaping our perception of those living with a rare disease. By entering each living room with an open mind and heart, you will leave with a new level of understanding and compassion.

A Night Of Conversations:

6:00 PM EST – Welcome
Leigh Hartnagel Hatcher, Managing Director, H4B Boston

6:05 – Moderator introduction
Henk Groenewald

6:10
Kelsey Coleman, graphic artist and brand builder
“One student’s fight for her future”

6:25
Alice Payne, lawyer, mother, comedian
“Laughing with life’s unpredictability”

6:40
Loryn Brantz, Emmy-winning children’s book author
“A mother’s rare resilience”

6:55
Kam Redlawsk, artist and writer whose work is showcased on our agency walls
“Creating art to capture the rare experience”

7:10
Questions and closing remarks

OUR PERSONAL STORYTELLERS

Kelsey Coleman

Graphic artist and brand builder
“One student’s fight for her future”

Alice Payne

Lawyer, mother, comedian
“Laughing with life’s unpredictability”

Loryn Brantz

Emmy-winning children’s
book author
“A mother’s rare resilience”

Kam Redlawsk

Artist and writer
“Creating art to capture
the rare experience”